Patient Engagement Manager (Part-time)

This a Full Remote job, the offer is available from: New York (USA) Role Summary The Patient Engagement Manager position is a contract part-time opportunity for an individual to impactfully contribute to ensuring that the patient voice is incorporated into Lexeo program development and key initiatives. Areas of focus include Friedreich ataxia cardiomyopathy (FA-CM) and Plakophilin-2 arrhythmogenic cardiomyopathy (PKP2-ACM) programs. We seek candidates with the desire to make a difference for patient communities and to contribute cross-functionally across Lexeo. As a member of the Medical Affairs team, this key role serves as a liaison among patients, families, advocates, the community, and Lexeo. The Patient Engagement Manager supports Lexeo’s role as a trusted partner to rare disease communities and leader in cutting-edge science by identifying unmet needs in patient communities, developing patient materials and external communications, and by representing Lexeo at patient community events. This individual will be part of a team shaping the therapeutic area landscape for gene therapy launch readiness and joining Lexeo during an expansion phase and an exciting time, offering an opportunity for professional development and advancement. Desired Candidate Profile In addition to the required qualifications listed below for this role, we are seeking a team member who is highly motivated and compassionate with a proactive approach to their work. An individual who thinks outside the box, is solution-driven, open and adaptable to change, and wants to meaningfully contribute to shaping Patient Engagement at Lexeo will thrive in this role! We are currently seeking part-time support up to 25 hours per week, with the ability to eventually increase to 40 hours per week. If this sounds like you, we welcome you to apply! An individual located in the Eastern time zone or willing to work Eastern time zone hours is preferred. Travel will be required to attend congresses and meetings pertinent to the role and to the NYHQ Lexeo office as necessary. Primary Responsibilities • Contribute to the development of and manage execution of the medical affairs patient engagement plan aligned with program goals and key deliverables • Maintain and cultivate trust-based relationships with patient advocacy organizations, consistent with the phase of development of Lexeo clinical programs, to enable collaboration across shared goals • Liaise with external agencies to ensure program execution and delivery including content development to support department strategies • Provide internal stakeholders with actionable insights gathered from interactions with patient advocacy groups • Collaborate with Clinical Development and Clinical Operations to support development of asset-specific pre-launch readiness patient materials needed to optimize launch execution • Implement patient engagement programs that include educational programs, patient speaker engagement, advisory councils, and clinical trial awareness • Support congress planning and logistics including identifying opportunities for onsite engagement, booth presence and materials creation • Manage social media channel development and creation of digital assets to support it • Works to amplify the culture of Lexeo as a trusted partner to patients • Represent Lexeo at patient community meetings and events where appropriate • Ensure all Lexeo employees have an opportunity to learn about patient perspective and Lexeo’s commitment to the communities we serve • Adhere to Lexeo Therapeutics’ values, culture, and policies Required Skills and Qualifications • RN, NP, PA, PharmD or other healthcare-associated roles in life sciences with experience working directly with patients and/or patient communities; rare disease, cardiac and/or gene therapy experience preferred • Minimum 3 years of relevant experience at manager-level responsibilities • Interest and capacity to learn and understand program science. Gene therapy experience and/or cardiac disease experience highly desirable • Ability to interpret key scientific data and translate findings into patient-friendly language to meet educational and research needs • Strong interpersonal, presentation, and communication skills, and demonstrated ability to work collaboratively in a dynamic, fast-paced, team-oriented environment and to prioritize activities based on quickly changing information • Excellent project management skills with the ability to manage multiple projects and teams with shifting timelines • Strong PowerPoint presentation and design skills preferred • Ability to travel approximately 30% within the US and globally, including quarterly to NY HQ • Ability to work Eastern time zone • Ability to work up to 25 hours per week, with the possibility of increased hours as neededAbout Lexeo Lexeo Therapeutics is a clinical-stage genetic medicine company headquartered in New York City, pioneering cardiac genetic medicine candidates to treat the root causes of inherited cardiovascular diseases. Our lead program, LX2006, targets cardiomyopathy associated with Friedreich’s Ataxia and anchors a broader pipeline addressing genetically defined conditions such as hypertrophic and arrhythmogenic cardiomyopathies. Backed by a strong financial foundation, Lexeo is positioned to translate groundbreaking science into durable clinical impact. Our work culture is a hybrid model with 2 days/week in the New York City office and 3 days working from home. Lexeo Therapeutics is an EEO employer committed to an exciting, diverse, and enriching work environment. This offer from "Lexeo Therapeutics" has been enriched by Jobgether.com and got a 74% flex score. Apply tot his job